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Photographin Epilepsy...


12 years 8 months ago #116681 by Dori
I was diagnosed officially with Epilepsy 6 years ago. I had been having seizures for 18 years and until I had a GM, went undiagnosed. (Brain damage from my EX husband.) Anywho, I have tried to 'photograph' what my seizures are. These don't represent mine tho. My seizures stem from the Left Temporal Lobe, when I seize I am just 'not there'. These represent a 'visual seizure'. I am still trying to figure out what mine would 'look' like. Any suggestions? C & C welcome.

BTW, I am not looking for sympathy.

Major stacked filters, slow shutter, zoomed.
BW version...
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Color...
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Thanks
Don't pi$$ me off, I am running out of room to store the bodies...

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12 years 8 months ago #116693 by chasrich
This is a confusing image. I see ghosts in the trees and shadows where they do not belong. I have a level of frustration as I grasp for camera controls that are just not there. At some point it makes me feel a little dizzy and vertigoish (new word alert). Exhausted in the aftermath.
“Amateurs worry about equipment, professionals worry about money, masters worry about light, I just make pictures… ” ~ Vernon Trent
The following user(s) said Thank You: Dori
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12 years 8 months ago #116699 by Dori
Thanks so much. I succeeded!! That is exactly what I was trying to do. I appreciate your reply.
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12 years 8 months ago #116701 by chasrich
ChasRich shoots... and scores! :judge:

I'm glad I saw what you were trying to show.
“Amateurs worry about equipment, professionals worry about money, masters worry about light, I just make pictures… ” ~ Vernon Trent
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12 years 8 months ago - 12 years 8 months ago #116710 by Dori
So am I, no one else has.

Please don't be worried about responding. Negatively or otherwise. I have a thick skin. I posted this for a two-fold reason; to try to make people aware of Epilepsy and to critique my photos, offer suggestions. So many times people have asked what the Medical ID band I wear is for and when the find out the fade into the background. The dialogue stops, which is sad.

Thanks, Dori
Don't pi$$ me off, I am running out of room to store the bodies...

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12 years 8 months ago #116730 by Baydream
It does show the distortion that must be very frustrating. Thank you for sharing and finding a way to help the rest of us see the world through your eyes.
Shoot, learn and share. It will make you a better photographer.
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Photo Comments
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12 years 8 months ago #116765 by eryck
i think its interesting and would be worth it to do more.
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12 years 8 months ago #116767 by mj~shutterbugg
Trying to photograph and pull forth a feeling so confusing and hard to place into words is tough. The image is confusing, unclear (focal wise), has ghosts, and in general takes a toll to look at and determine what's going on. From what you've described that was your goal. I know how hard it is to put into a visual what you feel. I have yet to be able to photograph appropriately how my mood disorder makes me feel. The confusion and isolation. I think you are heading in the right direction. I think having a more vague subject would add to the feelings.
Think Off-Center ~ George Carlin
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12 years 8 months ago #116882 by Rob pix4u2
Photographing what it is like to have a tonic/clonic siezure is hard to begin with but I think you have done a good job. Do you have any prodromal auras or symptoms ? I've observed many seizures over my years as a nurse so I know of what you speak.
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12 years 8 months ago - 12 years 8 months ago #116912 by Dori

Baydream wrote: It does show the distortion that must be very frustrating. Thank you for sharing and finding a way to help the rest of us see the world through your eyes.

Thanks, and thanks for responding!

eryck wrote: i think its interesting and would be worth it to do more.

Thanks for commenting!

mj~shutterbugg wrote: Trying to photograph and pull forth a feeling so confusing and hard to place into words is tough. The image is confusing, unclear (focal wise), has ghosts, and in general takes a toll to look at and determine what's going on. From what you've described that was your goal. I know how hard it is to put into a visual what you feel. I have yet to be able to photograph appropriately how my mood disorder makes me feel. The confusion and isolation. I think you are heading in the right direction. I think having a more vague subject would add to the feelings.

Thanks for replying and thanks for sharing. Good point on the vague aspect. That will give me a direction to go.

Rob pix4u2 wrote: Photographing what it is like to have a tonic/clonic siezure is hard to begin with but I think you have done a good job. Do you have any prodromal auras or symptoms ? I've observed many seizures over my years as a nurse so I know of what you speak.

That is the irony, I have had only GM/TC and I ended up photographing what one might 'look' like. I have Simple Partials and the occasional Complex Partial. I have no auras to make me aware that one is coming on. They just are there. When I seize I lose my memory. That is if I seize when talking to a person I know, I know that I know who they are. But I don't understand what they are saying to me. I have enough awareness to respond with 'ah' or 'uh-huh' at moments. I forget how to do my job which is very simple until it is over.

Once again I thank everyone for responding to this post as well as the suggestions and interest.

Dori
Don't pi$$ me off, I am running out of room to store the bodies...

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